• May 11, 2021 from 8:00am to 11:00am
  • Location: Virtual/ Zoom
  • Latest Activity: May 7, 2021

https://annualmeeting.asgct.org/abstracts?fbclid=IwAR00fkTU-76n8rMCiEgK_4ngHMIInI4Y9kchQz06Il6sFrO251ZEyaOOPAE

 

This is a drop-in virtual question and answer opportunitiy with Pamela Lam, researcher at Nationwide Hospital.  LALD Aware and AE LALD organizations have donated to this research.  It is in the preclinical phase, but initial results with mice have been encouraging.  Information on registration is available on the Facebook LAL-D Family Support group.  

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GLOBAL GENES RARE PATIENT ADVOCACY SUMMIT 2019

September 18th-September 20th at the  Sheraton San Diego Hotel & Marina.

GLOBAL GENES 2019.

Meet the rare disease comminuty, family, patients, caregivers, researchers and clinicians. 

Learn about new developments and research for rare diseases. 

There is strength in numbers and this is a great opportunity to learn and get involved.

See you there!