Not only do we have a new LAL-D Aware Information and LAL-D Community website, but we are creating an LAL-D Aware Patient Registry.
What is a Patient Registry?
A Patient Registry is a way to collect health information so researchers can learn more about a condition. You will be asked to answer questions about your health and symptoms of the condition, but your name and contact information will not be included, so the health information provided will not be linked to information that could identify you. Participation in the LAL-D Aware Registry is voluntary. You do not have to participate, but we welcome you if you choose to do so.
Stand by for more LAL-D Patient Registry Information coming soon...